tag:blogger.com,1999:blog-7853137593793339959.post718937231967972555..comments2023-10-10T01:28:44.416+13:00Comments on NICETIES: Don't cripple your future with limps from your past.Alice Joneshttp://www.blogger.com/profile/14047729367247843563noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7853137593793339959.post-34649887618792784262011-10-17T23:22:16.119+13:002011-10-17T23:22:16.119+13:00Oh my! I found you today after you followed my bl...Oh my! I found you today after you followed my blog - you poor little bugger :( one of my closest friends suffers from the same disease - can you believe it?? Not as severe as you, but I must pass on the details of this drug. I know exactly what it is like to live with pain like this too :( a year ago I gave birth to my son. Afterwards I developed pelvic girdle disfunction, so severely I still cannot walk properly or sit down for long periods of time. I won't even go into my daily cocktail of medications. Trialing prolotherapy at the moment - horrendously painful, but my last resort. Thank you for sharing your story, as painful as it is. I'm so glad you have found something that has worked.<br />Toni xoLost Cabin Vintagehttps://www.blogger.com/profile/12474401631315979558noreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-25952308737242816392011-10-15T12:48:15.254+13:002011-10-15T12:48:15.254+13:00auto immune diseases are evil. i'm glad the hu...auto immune diseases are evil. i'm glad the humira helps. such pain you've had to endure. you have much strength inside & out. that was brave of you to share!Teddihttps://www.blogger.com/profile/13967940035596403932noreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-7934802955593350222011-05-10T00:12:16.272+12:002011-05-10T00:12:16.272+12:00Hey Alice,
Glad to hear the EpiPen has worked won...Hey Alice, <br />Glad to hear the EpiPen has worked wonders for your pain management :) <br />Reading the beginning of your blog and what you went through in high school is a complete flash back to my good old days and I remember going through the exact same thing. I got sick of telling people why I couldn't participate in P.E. I was the walking pharmacy and I got so sick of the questions that for my 5th form speech assignment I decided to give a speech on Lupus. I did my research for the first time and made it my mission to make sure that everyone was informed, inculding myself. I lined up all my meds for the shock factor to grab their attention and that's how I outed myself and got people aware. If there was one thing I wasn't going to put up with it was gossip and blabber about me being lazy. Since then its like a lucky dip each day, sometimes you win - and theres no pain, and sometimes you lose. <br />Your brave and such a trooper! <br />Keep it up!!Theresehttps://www.blogger.com/profile/08742387653951964865noreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-17170013217424423582011-03-28T13:29:58.230+13:002011-03-28T13:29:58.230+13:00my mother has AS and on the injections too. she is...my mother has AS and on the injections too. she is amazingly optimistic about it despite she is so much in pain, not as much now thanks to new injections..<br /><br />its great that you had the gut to share all your personal stuff on here, its so inspiring of you. <br /><br />thinking of you,xAnonymoushttps://www.blogger.com/profile/00935575913367575498noreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-90660352054341615012011-03-22T21:18:17.663+13:002011-03-22T21:18:17.663+13:00Alice, reading this brought me to tears. I have be...Alice, reading this brought me to tears. I have been there and watched you go through your AS journey, always wishing that you had not inherited it from me and that I could take away the pain.I can't change what is - but I am SO grateful that you now live a more "normal" life, in a body that works so well for you. The difference is amazing, thanks to the wonders of Humira and the NZ Government funding of it. <br /><br />Your Mum xxMarynoreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-46730597938654560672011-03-22T14:38:09.751+13:002011-03-22T14:38:09.751+13:00this is amazing.
i'm so glad you're pain f...this is amazing.<br />i'm so glad you're pain free now.<br />it breaks my heart when people can't afford medications needed to live day to day.<br />if there's a cure or something to make someone's life a little eaiser, it should be available & affordable to those who are in need.<br /><br />♥elisabethelisabethhttps://www.blogger.com/profile/17346040532506924227noreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-85199280001501435272011-03-22T13:33:38.918+13:002011-03-22T13:33:38.918+13:00Such a great post Alice.
I first heard about Ankyl...Such a great post Alice.<br />I first heard about Ankylosing Spondylitis when reading "The Dirt" about Motley Crue - Mick Mars has it, poor dude.<br />But the book didn't go in to much detail and it was really enlightening reading this. I think I started following you on Twitter shortly after you started Humira so I never knew you when the AS was in full effect. It sounds terrible. I'm so glad you've found something that works.Sarah-Rosehttps://www.blogger.com/profile/02977113147323719558noreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-24734783458190633792011-03-22T08:34:15.984+13:002011-03-22T08:34:15.984+13:00I'd heard of AS (I know I'll spell it wron...I'd heard of AS (I know I'll spell it wrong!) before, but didn't know what it was!<br /><br />It sounds horrid, I'm glad you have the drugs you need now :) I suffer from aches and pains in my back and neck from an old injury, I'm just glad it's nothing more serious!<br /><br />xSamhttps://www.blogger.com/profile/09582762102991453922noreply@blogger.comtag:blogger.com,1999:blog-7853137593793339959.post-33985515601349496262011-03-21T19:59:15.124+13:002011-03-21T19:59:15.124+13:00This is such a great post Alice. Thanks for sharin...This is such a great post Alice. Thanks for sharing your story.I know what it's like to be an auto-immune "sicky", and that writing smoething like this is very brave.Anonymoushttps://www.blogger.com/profile/03876277043564875257noreply@blogger.com